Skip to main content

Here's the deal...



It feels like so many people have "felt sorry" for us... they have "felt" for us... pitied us even. It legit confuses me. I get that we were dealt something super unexpected, but to be completely honest with you, I think I always knew. I always feared that I couldn't do it.. and I AM... we're doin' it and it is not life taking.... it is so life giving.

Yes, we have a child who was born with a physical difference... some would say a physical disadvantage. Is that different than my disadvantages internally? My heart is ugly at times... I judge, I anger so quickly, my patience is like... ugh. Can I run? Yeah. Can I be kind to my children? Not always. Do I "hate" that woman who is perfectly skinny in her beautiful range rover with freshly ombre'd hair in her lulu lemon tights and long puff Patagonia stumbling in from yoga class to pick up her child? Sometimes.

That's envy. That's coveting.... you know those sweet little ten commandments?  You know that one that says "Thou shall not covet"- yeah I'm doin' it. Like a lot.

I'm trying to take this life in my own hands, trying to control any and all things... yeah - WRONG. I have to be surrounded by people who remind me I CANT DO THAT BUT HE CAN.

My point is this: PLEASE don't feel sorry for us. We are richer than we have ever been. We have a home FULL of babies and love... we have full bellies. We have a covenant marriage that was done before Him. We have a roof...we have a VILLAGE of people who would lay down and die for us. We have a super sassy 4 year old who says things like "Thank you for your courage" and "Just think of me when you get scared". She is a 4 year old with an old WISE soul. She constantly brings us back to the ground and reminds us who we are and what our values are. That baby's gonna change lives.

We have a 2 year old who walks into a room and all eyes turn to him... because he's cute? Sure. But more than that because he carries this light that everyone needs to see. He has humor. He's everyone's friend. He is all things boy, keep ya on your toes, make ya belly laugh and also ask you constantly "mommy, you otay?" because his heart is so so so kind. Totally life GIVING. That baby's gonna give so many people so much happiness.

We have an angel baby that was gifted to us from our Father himself, which is why "Dollie" (a gift from God) is so fitting. That baby will teach you strength... she can zone out every single noise (pr procedure) in life just to connect eyes and share a smile. She is the snuggliest, happiest, most chill little flower child one could have ever BEGGED for. That baby's gonna move mountains.

We are Rich.
Poor.
But Rich.

We have what so many people pray for... family.

Our sweet Spina Bifida baby is not a curse... but a total blessing. She has allowed us to see life in a whole new lens. THANK YOU GOD FOR THAT. We are living this life differently that imagined but He has COVERED us with His grace. I see every flower now. Every tree.... every animal, even random wildlife. My eyes are open to His beauty. The sky is bluer, the air is crisper, the snuggles are sweeter.

I mean these things.

Are the appointments hard? Yes.

I don't love her any less.

Are the surgeries unbearable? Yes.

He carries me.

This year is for me.. 2019 is for me to focus on me. I’m going to love big, get coffee with friends, go to Bible study. I’m going to let babysitters babysit while I  get a massage, or see the dentist... haircut..nails done. I’m going to GET RIPPED with Bodyback and workout without my kids. I’m gonna quit drinking so much wine, eating so many sweets and wear those beautiful Free people bell bottoms. I’m doin it- who’s with me?

Xoxo 2019 #dome

Comments

Popular posts from this blog

so... about me.

I have been lost. In adulthood. In wife life. In motherhood. Where did I go? Me... Emily. The photo junkie, jewelry artist, music loving, traveling fool. What happened to date nights, or even late nights? Slow dancing to Billie Holiday with a bottle of red while fish tacos cook in the kitchen. I day dream of Costa Rica and shopping sprees, sleeping in with my handsome man next to me and having coffee in bed. Let's talk self care. It used to mean pedicures and massages, a weekend getaway or a girls night. It's no secret that life is hard and somewhere in the midst I've lost myself. I have forgotten who i am aside from being a wife, a mom, a friend, a daughter. I don't get my hair done or my nails. I would die for a massage or just a fancy bath where I could soak as long as I want. I could use a few strokes of mascara and could totally benefit from some whitening strips. I didn't realize I had abandoned not just these superficial things but also TRULY carin

the Story.

As I sit in this hospital room listening to the clicking of the IV fluids and a sweet little teeny tiny baby snore, I endulge myself with a 16oz mocha and a chocolate chip muffin and think two things: Dollie is the toughest person I have ever met and this shiz has  been hard. Yesterday at 8:00 am central time Dahlia underwent a 4 hour surgery to repair her grade 4 hydronephrosis of her left kidney and to release both of her Achilles’ tendons in her tiny baby feet. At 20 weeks pregnant I went in to Dr. Brody’s office for what I thought was a typical ultrasound. It was me and Brooks and it turned out it was my 20 week anatomy scan. As Robin scanned me she noticed that the baby’s left kidney was dilated but assured me that it sometimes happens and not to freak out. She continued to scan that baby and as she got to the brain she grew more quiet than normal. At that time Dr. Brody popped in and looked at the screen and I could see with the exchange of looks that something was wrong. R

let. that. shit. go.

The stigma. The expectations.  The looks. Society and the approval needed.  It's too much and I just don't want to do it anymore. I wasn't sleeping, my mind couldn't slow down. I felt like I was going to black out, worried about my heart... anxiety.  I have learned that mourning is a big part of life.. like grieving, not beautiful sunsets and a hot cup o joe.  For me, grieving isn't a one part thing, it is ridiculously complex and slightly confusing. We have spent time grieving what we thought life was going to look like and time accepting that it is going to look differently. I had expected that my life was going to look exactly as I had always dreamt... wife, mom, social circles, world travels, big moves, promotions, aunts uncles grandparents, the whole shabang. Never in a million years did I think I would have huge bumps along the way, heavy topics to wade through, the worlds heaviest decisions to make, and then.... all the other normal stuff of wife,mom, social