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Showing posts from June, 2018

times a tickin'

Quick Summary: 36 weeks pregnant Dahlia has myelomeningocele Spina Bifida which is the most severe type. Her spine isn't closed and nerves are being exposed to amniotic fluid while spinal fluid is leaking. She wasn't a candidate for fetal surgery b/c nerve damage had been done already (which obviously can not be reversed) and also b/c they didn't see significant hind brain herniation which is a good thing . We decided to go to Vanderbilt and have a post natal surgery to close her spine... the best ever, Dr. Brody is coming with (BLESS him). Potential affects: Myelomeningocele will affect her motor skills. It isn't likely to affect anything cognitive. Motor skills being movement and function below the lesion. Her lesion is at L4/L5 which is great as it is super low on her spine. She will possibly have hydrocephalus; however, her brain ventricles are dilated minimally and WE PRAY she doesn't have it. If she does, we pray it won't present right aw

Poppin that 1950s housewife dream

Poppin' that 1950's housewife dream. I try. I REALLY try! I remember I used to fantasize about being a 1950's housewife (so much so that my counselor even knows allllll about it). I pictured my children waking up to the smell of bacon, cutting sandwiches into sweet little crustless hearts and leaving handwritten notes in each lunch box. Every evening faced, well-manored children would dive into daddy’s arms as he walks in briefcase in hand. I would kiss him gently and tell him to put his feet up and turn the news on while I handed him an icy mugged beer and pulled bread from the oven. My lips would be glossed, I would have a new strappy dress on and my house would match my appearance. Fresh cut flowers to greet any and all guests as well as the smell of lavender candles and dim lights.  After saying hello, we would walk around and admire my home, my garden, my art. FOR REAL, EMILY?  GET A REAL JOB. I mean... THAT is ridiculous. This is real life: I pick up in