This Life as I see it

Dollie is scheduled to have a pyeloplasty on her left kidney on Wednesday November 14 at 8:00 am central time. I am in no place to answer questions, talk details, or small talk... just vein real. Please feel free to research it... and also PLEASE keep her in your prayers as this day approaches and she spends 2 hours in the OR. Dolls has had an issue with her kidney being dilated since I was 20 weeks pregnant... I have known this time would come and we want to make sure we are doing everything possible to ensure health. Before we ever saw brain ventricle dilation, before we ever knew it was myelomeningocele... we saw the kidney. I had so much hope that it would resolve itself, it just hasn't. This isn't an elective procedure... this is mandatory to save her kidney. So the bladder has a small tube at the bottom of it that attaches it to the kidney... the ureter. Right where Dahlia's bladder and kidney attach the ureter is pinched, so to speak. The kidney is an ...

The million dollar question. Probably, yes. But likely with braces, maybe without and maybe not forever or maybe forever. Now that we’ve addressed that you better GIVE ME YOUR WORD that you’re going to read this TO THE END. Promise? Some people have just straight up asked. Some people ask with their eyes but no words come out. Some people send the “Maggie I walking!” Video to say she will too. But everyone wants to know- is Dahlia going to walk? Straight up- her walking is like NOTHING in the grand scheme. To you, it may seem like it’s only 9 months away. To us that’s  270 days of imaging, contemplating surgeries, cast changes and trips to and from Vanderbilt. We are watching for normal urine output, pain, eating behaviors, headaches, soft spot softness and rest routines. We are scheduling physical therapy, occupational therapy and developmental therapy at 3 mos old. Spina Bifida, to me, before I was thrown into it was just about paralysis, too.  You...