Skip to main content

.total transparency.



So, becoming a mom is one of... if not THE... most difficult thing you can ever go through. Is it beautiful? Absolutely. Do you feel like the luckiest person in the entire world? Yes. It's scary. It's so much pressure.
Everyone paints this picture of "yeah, it's so hard! You don't get sleep. It causes stress in your relationship. It's so expensive! Well yeah...but so does prom night.

Those things are so so so so minor in the grand scheme. I (someone who requires a real 10'hours of sleep a night) have become totally cool with 4! Coffee. It's one of life's most beautiful pleasures. Wanna know what's hard about becoming a mom?
Missing your old life.
Freedom.
Feeling lonely. Yes, it's loud, you're always with someone... but you miss adult interaction... conversation... you may even start losing some hard earned brain cells.
Worry. Fear. What will be my childs struggles? Will they have friends? Will they be bullied? And for what? How am I ever going to give them the tools they need? Am I repeating the cycle that I was a part of? AM I GOING TO RUIN THEIR LIVES? Heavy stuff, man.

Raising a child with special needs is hard. Not because she is hard. Because I am so scared for her. How will I ever protect her? How am I ever going to explain to her the pain she undergoes!? From surgeries.... from people staring... from her not understanding WHY this happened to her. How will I ever understand why?

Right now i'm struggling. I'm struggling because I can't possibly give myself evenly to three small babies and my husband too. Someone is always angry with me. Everyone needs me and I just can't seem to give enough. Nobody understands the weekly trips to Vanderbilt or why they can't come too. Dollie doesn't understand the trips and truly hates them. She is fearful that everyone she meets is going to hurt her somehow. Why? Because that's what she knows... surgery... brain mris...casting. She associates me shushing her and pacis to me trying to distract her from pain. It's hard.

Nobody can ever do the right thing, in my opinion. If you stare, i'm mad. If you ask a million questions, i'm mad. I'm just mad and i'm slowly trying to navigate through society. I feel an obligation to update everyone on how she's doing.. that makes me mad too. I have to relive it like 600 times a day. Why can't she just be a baby... a sweet cooing little baby doll... my Dollie Mae? Why does she have to be Dollie Mae, the baby with spina bifida? Why does everyone need to know if she will walk? What her scar looks like? I DONT KNOW. I pray she will. But I just don't know an di really don't want to even think that far ahead.

The worst part.... they ask because they CARE.

WHY CANT I CLING TO THAT? Am I that ungrateful? Like... THANK YOU everyone in this world who has prayed for my baby. THANK YOU for caring. Thank you for wanting to see us, for asking. THANK YOU and forgive me that my heart has anger in it. Forgive me for my ridiculous thoughts and questions, it's a ME problem that i'm working through. So, please.. bear with me as I figure this all out.

Momming, not for the faint hearted!



Comments

Popular posts from this blog

so... about me.

I have been lost. In adulthood. In wife life. In motherhood. Where did I go? Me... Emily. The photo junkie, jewelry artist, music loving, traveling fool. What happened to date nights, or even late nights? Slow dancing to Billie Holiday with a bottle of red while fish tacos cook in the kitchen. I day dream of Costa Rica and shopping sprees, sleeping in with my handsome man next to me and having coffee in bed. Let's talk self care. It used to mean pedicures and massages, a weekend getaway or a girls night. It's no secret that life is hard and somewhere in the midst I've lost myself. I have forgotten who i am aside from being a wife, a mom, a friend, a daughter. I don't get my hair done or my nails. I would die for a massage or just a fancy bath where I could soak as long as I want. I could use a few strokes of mascara and could totally benefit from some whitening strips. I didn't realize I had abandoned not just these superficial things but also TRULY carin...

the Story.

As I sit in this hospital room listening to the clicking of the IV fluids and a sweet little teeny tiny baby snore, I endulge myself with a 16oz mocha and a chocolate chip muffin and think two things: Dollie is the toughest person I have ever met and this shiz has  been hard. Yesterday at 8:00 am central time Dahlia underwent a 4 hour surgery to repair her grade 4 hydronephrosis of her left kidney and to release both of her Achilles’ tendons in her tiny baby feet. At 20 weeks pregnant I went in to Dr. Brody’s office for what I thought was a typical ultrasound. It was me and Brooks and it turned out it was my 20 week anatomy scan. As Robin scanned me she noticed that the baby’s left kidney was dilated but assured me that it sometimes happens and not to freak out. She continued to scan that baby and as she got to the brain she grew more quiet than normal. At that time Dr. Brody popped in and looked at the screen and I could see with the exchange of looks that something was wron...

dark as night.

Today feels blah.  I am sad... tired... alone... depressed.  It feels like I have noone to call, noone who understands and honestly I think my support system is just tired also.  Supporting someone who is struggling is hard. There is so much encouraging, inviting and loving that goes into supporting a friend who's in a tough spot. It gets old... always having to reach out and check in. Always having to be the one to sprinkle some positivity, it can wear anyone out.  Lately it has felt like a dark cloud is following me around. It feels like the enemy is constantly feeding me lies about myself and who I am. I feel distant from God, I am struggling to hear Him. I long for old relationships with friends and family. I miss playdates, jokes, getting a beer. I miss going shopping with my mom. I miss alone time with my husband. I miss My Morning Jacket. I want a weekend getaway. I'm worried. We have 9 days until Dollie's next surgery. It is on her clubfeet...